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Sara Ringer

Digestive Disease Patient Advocate

Sooooo keeping track of everything I’ve done is not my strong point. Actually it’s pretty far down the list of things I’m good at. Actually it’s not even on the list of things I’m good at! But here is what I have kept track of in the past decade of my life as an advocate

OVERVIEW

  • - Founder of Inflamed & Untamed
  • - YouTube creator with content focused on health
  • - Member of several patient advisory boards
  • - Co-Founder of Gut Over Here Patient Meetup events
  • - CCFA Camp Oasis Michigan LIT Program Director and camp counselor 2009-2016
  • - Consultant, Speaker, and Educator on several topics concerning IBD, motility diseases, and living with chronic illness
  • - One of the original 3 Founders of Girls With Guts

2020

PRESENTATIONS/PROJECTS/ADVOCACY WORK

IIFGD Patient Panel

Member of CCF Patient Education Advisory Taskforce

PROPS Member: Patient Reported Outcomes After Pouch Surgery

Member of NORD Rare Action Network 

IBD Social Circle Member

P2PEP Advisory Board

P2PEP speaker

Chronic Disease Coalition Ambassador

Rare Disease Day for Rare IL to lobby on issues that matter to rare disease patients (Upcoming March 4)

Digestive Disease National Coalition Spring Public Policy Forum (Upcoming March 1-2)

EDUCATION

Crohn’s Colitis Congress conference (Upcoming Jan 23-25)

P2PEP19 (Upcoming in April)

Digestive Disease Week (upcoming)

Oley Foundation Annual Conference (upcoming)

 

2019

PRESENTATIONS/PROJECTS/ADVOCACY WORK

Co-author: Listening to the Patient: Improving the Design and Conduct of Clinical Trials in Inflammatory Bowel Diseases (upcoming publish date)

Patient Advisory Board for Patient-to-Patient Education Project at University of Michigan 

AGA IBD Parenthood Project partner

Speaker at Genentech San Francisco: How Patients Feel About the Endpoints in Clinical Trials and What Matters to Them

Speaker at Genentech San Francisco: The Cost of Being an IBD Patient – It’s More than Just Money

CCF Twitter chat host (with Dr. Christina Ha): The Cost of Care in IBD

PROPS (Patient Reported Outcomes after Pouch Surgery) study participant

Member of the IBD Social Circle 

Member of CCF Patient Advisory Task Force

Chronic Disease Coalition Ambassador 

Clara Health Breakthrough Crew member

WEGO Health Patient Partner 

Consultant to Genentech, Janssen, Abbvie, CCF, Roche

IFFGD Patient Advocate panel

Author and moderator for InflammatoryBowelDisease.net

 

EDUCATION

Crohn’s Colitis Congress conference

P2PEP19

Digestive Disease Week conference

Oley Foundation Annual Conference Online attendee

2018

PRESENTATIONS/PROJECTS/ADVOCACY WORK

Presentation of my experience as a Crohn’s Patient and Advocate to Genentech Chicago

Co-Leader of Sex and Intimacy with Chronic Illness discussion at the HealtheVoices18 conference

Instagram takeover for the CCF Instagram account on World IBD Day

Twitter takeover for Duke GI at Digestive Disease Week

Co-host (with Shawn Bethea of Chronically Strong blog) of Twitter chat on the topic of Holiday’s and Chronic Illness for the Girls With Guts account

Member of the CCF IBD Patient Advisory Task Force

HealtheVoices Impact Fund Advisory Board member

Chronic Disease Coalition Ambassador

IBD Social Circle member

DripDrop ORS Ambassador

WEGO Health Patient Partner

Clara Health Patient Ambassador

Consultant to Janssen, Abbvie, ThriveRx, Celgene, Takeda, CCF, AGA

Author at InflammatoryBowelDisease.net

 

EDUCATION

Crohn’s and Colitis Congress conference

P2PEP Conference

Digestive Disease Week Conference

Oley Foundation conference online attendee

HealtheVoices Conference

2017

PRESENTATIONS/PROJECTS/ADVOCACY WORK

University of Michigan IBD Patient Advisory Board member

University of Chicago IBD Patient Advisory Board member

Faculty presenter at the CCF Clinical Trials Workshop Presentation: How Patients Feel About the Endpoints

Consultant to CCF, Janssen, UCB, Abbvie

CCF Patient Advisory Task Force member

Author at InflammatoryBowelDisease.net (formerly CrohnsDisease.com)

DripDrop ORS Ambassador

Twitter chat host: Dating and Intimacy with IBD for #IBDSC in partnership with Janssen Biotech

Co-presenter (with Dan Sharp): What Patients Learn About IBD on the Internet

Twitter chat host for CCF on Clinical Trials

 

EDUCATION

Digestive Disease Week conference

Advances in IBD conference

HealtheVoices conference online attendee

P2PEP

University of Chicago patient education night

Health Union conference

2016

PRESENTATIONS/PROJECTS/ADVOCACY WORK

Presentation: IBD and Mental Health Presented at P2PEP

Presentation: IBD and Dating/Intimacy. Presented at P2PEP

University of Michigan IBD Patient Advisory Board member

University of Chicago IBD Patient Advisory Board member

Patient panel member for IBD Unmasked campaign

Consultant to CCF, Takeda, Janssen

Co-developer of IBD Peer Mentorship program at University of Chicago

DripDrop ORS Ambassador

HealtheVoices advisory board

Author at CrohnsDisease.com

Member and consultant for IBD Social Circle in partnership with Janssen Biotech

Host of 2 Twitter chats for #IBDSC in partnership with Janssen Biotech

 

EDUCATION

Digestive Disease Week conference

Advances in IBD conference

HealtheVoices conference

BioExperience Tour at Janssen Pharmaceuticals

University of Chicago Patient Education night

2015

PRESENTATIONS/PROJECTS/ADVOCACY WORK

Co-founded Gut Over Here, You Guys and held first meetup in Washington DC

IBD Round Table speaker in all 2015 episodes

HealtheVoices Patient Advisor and speaker

Camp Oasis Michigan LIT program leader and counselor

CCF Twitter chat co-host (with Dr. Peter Higgins and Dan Sharp) on biologics 

Co-host of Twitter chat: Adolescence and IBD for #IBDSC sponsored by Janssen Biotech

Co-host: Teen Life and IBD Twitter chat for #IBDSC sponsored by Janssen Biotech

Interview with Sunny Anderson of Food Network

DripDrop ORS ambassador

IBD Social Circle member

University of Michigan IBD Patient Advisory Board member

University of Chicago IBD Patient Advisory Board member

PACT (Precision Approaches to Crohn’s Therapy) Expert Panel member

Consultant to CCFA, Janssen, UCB, Takeda

Cook for A Cure event guest

 

EDUCATION

Digestive Disease Week conference

Advances in IBD conference

Why Haven’t We Cured IBD?’ University of Chicago patient education night

HealtheVoices conference

2014

PROJECTS/PRESENTATIONS/ADVOCACY WORK.

Camp Oasis Michigan LIT Program Leader and counselor

Host of Inflamed & Untamed IBD patient meetup event in Orlando, Florida

CCFA Take Steps volunteer

Moderator of live Facebook discussion between patients and clinicians: IBD and Mental Wellness sponsored by Janssen Biotech

IBD Round Table speaker on all episodes

DripDrop ORS ambassador

Host: IBD Pajama Party live U-stream discussion for teen girls with IBD

IBD Social Circle member 

Get Your Guts in Gear bike ride for IBD volunteer

University of Michigan Patient Advisory Board member

University of Chicago Patient Advisory Board member

Co-host of Gut Together patient meetup in Orlando with The Great Bowel Movement

 

EDUCATION

Digestive Disease Week conference

Advances in IBD Clinical and Research conference

Oley Foundation annual conference

2013

PROJECTS/PRESENTATIONS/ADVOCACY WORK

IBD Round Table speaker on all episodes

CCFA Camp Oasis Michigan LIT Program Director and counselor

Get Your Guts in Gear bike ride for IBD volunteer

CCFA Take Steps volunteer

Featured special guest at Intense Intestines Foundation’s Climb for IBD event

2012

PRESENTATIONS/PROJECTS/ADVOCACY

Panelist of the Crohn’s Blogger Summit sponsored by UCB

CCFA Camp Oasis Michigan counselor

Co-Founder of Girls with Guts

Girls with Guts original advocacy meet up in Chicago

Get Your Guts in Gear bike ride for IBD participant

CCFA Take Steps volunteer

2011

PRESENTATIONS/PROJECTS/ADVOCACY

Founded Inflamed & Untamed on September 1, 2011

CCFA Camp Oasis Michigan Counselor

CCFA Take Steps volunteer

CCFA Movie Gala fundraiser volunteer

Host of live U-stream discussion on IBD with Jackie Zimmerman of Blood, Poop, and Tears

Awards

See them on this page!

Welcome to the NEW Inflamed & Untamed!

Please read

I’m so excited you finally get to see my new site. This is a period of transition as I continue moving my old website at tumblr to this new website. Please know that I am still working on this and there are still quite a few kinks to work out. the site performance and appearance will improve dramatically over time; hopefully very soon.

 Not all of my content has been moved here yet so if you’re looking for one of my old posts that isn’t here it’s still over at inflamed-and-untamed.com. Be sure to bookmark this new site as I have changed my URL. <3